> "It's so odd to me that we haven't come up with a term for high functioning autism to separate from low functioning."
If you are interested to learn, autistic people are typically assigned a level of support needs on a scale of 1 to 3. Most people who would once have received a diagnosis of Aspergers now receive the "level 1" designation. Based on your description, your family member is likely "level 3", possibly with comorbidities? I was assigned "level 2".
> "I cannot recall why Asperger's as a term was dropped or deemed controversial"
It was dropped because a number of labels, now all considered to be ASD, were discovered to be different presentations of the same underlying disorder. The divisions break down under scrutiny and the apparent modal jumps disappear when you control for comorbidities and the ability to mask.
> "How is it any different than people with obsessive compulsive tendencies claiming they have OCD? There's a huge difference."
I'm not the other poster, but I'm a different autistic adult to whom your complaints might apply. To answer this question, the difference is that I call myself an autist because I have been diagnosed as autistic, due to meeting the diagnostic criteria of autism.
> "this is the equivalent of stolen valor"
Please go to the equivalent of hell.
Disabled people are allowed to call ourselves by the correct labels without apologising that our suffering is less severe or less obvious than someone else sharing the same label.
> Disabled people are allowed to call ourselves by the correct labels without apologising that our suffering is less severe or less obvious than someone else sharing the same label.
I think you guys are perhaps talking past each other.
The fact you acknowledge and recognise 'less severe' (a significant understatement when comparing ASD to Downs) suggests that you do understand parent's point.
Parent, I also note, was not seeking or implying an apology was sought from people with less severe genetic conditions. Rather, that the implications on QoL, lifespan, social / familial imposition etc of Downs, is nothing at all like so called high-functioning ASD.
The parent comment was specifically and exclusively talking about autism, not Down's syndrome. I'm addressing their claim that it is "ridiculous" for an autistic person to "claim" to be autistic when other autistic people have worse outcomes.
I'm not interested in litigating the fairly obvious point that Down's syndrome is a much worse prognosis than ASD, and the comment to which I responded says nothing about it either.
If you are interested to learn, autistic people are typically assigned a level of support needs on a scale of 1 to 3. Most people who would once have received a diagnosis of Aspergers now receive the "level 1" designation. Based on your description, your family member is likely "level 3", possibly with comorbidities? I was assigned "level 2".
> "I cannot recall why Asperger's as a term was dropped or deemed controversial"
It was dropped because a number of labels, now all considered to be ASD, were discovered to be different presentations of the same underlying disorder. The divisions break down under scrutiny and the apparent modal jumps disappear when you control for comorbidities and the ability to mask.
> "How is it any different than people with obsessive compulsive tendencies claiming they have OCD? There's a huge difference."
I'm not the other poster, but I'm a different autistic adult to whom your complaints might apply. To answer this question, the difference is that I call myself an autist because I have been diagnosed as autistic, due to meeting the diagnostic criteria of autism.
> "this is the equivalent of stolen valor"
Please go to the equivalent of hell.
Disabled people are allowed to call ourselves by the correct labels without apologising that our suffering is less severe or less obvious than someone else sharing the same label.